Screaming into the void

Sep 29, 2023 6:10 AM

SugarLoaf23

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TMI warning***
So something is terribly wrong with my insides. My entire life I've had stomach problems. At 19 my gallbladder stopped working and after the 7 months of torture my doctors finally figured it out. Even after they removed it I never got completely better.

Whatever is wrong with me has been going into overdrive trying to kill me this year, and I've finally starting seeking a diagnosis. ***I get the equivalent of the stomach flu once a week at this point. I get excrutiating abdominal pain, sulfer burps, throw up bile almost exclusively, and everything runs through me like a river to the point that I need a towel under me at all times. Nausea medicine no longer helps at all. My GI doc ran some tests a few weeks ago and found my white blood cell count and inflammatory markers were through the roof.

Yesterday i finally got a colonoscopy and endoscopy where they found nothing. I almost cried when they told me this. I got sick again today and ended up in the ER when the pain got too bad. After multiple doses of morphine and a couple bags of saline it was manageable. They did a CT which showed a lot of inflammation and I almost cried in relief that they found something. It's not a diagnosis but it's something. A step in the right direction.

I'm at my limit. I'm terrified to eat. I'm terrified I'm going to lose my job. I haven't worked there long enough to use FMLA, and can't afford to just not have a job.

I've gotten to the point where if my stomach gets upset I have to fight off a panic attack and keep from crying because I know how much I'm going to hurt later.

I just need an answer. Any diagnosis. I have no idea what's wrong with me and it's terrifying. I wish I hadn't ignored being sick in my 20s. Now I'm looking at insane medical bills and trying not to think about it.

TL;DR - I'm really sick and don't know why. I'm hitting a wall trying to deal with it and I'm scared.

Just needed to vent. Let it die in usersub or whatever.

health

screamingintothevoid

venting

I'm really sorry, that's not a fair hand life dealt you. Hugs and I hope you find an answer soon.

2 years ago | Likes 3 Dislikes 0

All the best OP, hope you find some answers soon.

2 years ago | Likes 12 Dislikes 0

Calling Dr. House…

2 years ago | Likes 7 Dislikes 1

I probably can't be of much help, but do you also get very hungry, and then the burps and pain get very bad right after you eat?

2 years ago | Likes 11 Dislikes 1

Sometimes, especially if I eat fast. I've been trying to eat smaller portions but that only seems to help a little bit

2 years ago | Likes 1 Dislikes 0

Hmmm, the list of symptoms was really reminiscent of the time that I got giardia, which I thought might not be an obvious thing to look for. But in that case, it very much happened every time I ate anything. And as soon as the pain subsided, I'd get ravenous again. I hope you find the answers that you need. <3

2 years ago | Likes 2 Dislikes 0

Your symptoms sound very, very similar to what I had been going through for the longest time. Have they tried allergy tests? Recently found out that on top of my Hashimoto's, I also have Alpha-Gal Syndrome (tick bite disease). Maybe you have something you're severely allergic to? I hope you start feeling better!

2 years ago | Likes 4 Dislikes 0

I've been wondering that, but when I asked about allergy tests and my useless PCP just ran the basic eggs/seafood/dairy/nuts panel and said that was the only food allergy test there was. Which seemed sus. I should ask my GI about it

2 years ago | Likes 3 Dislikes 0

Yes, I'd definitely bring it up. It wouldn't hurt to ask, and it may help you figure some things out! It's absolutely frustrating, but hang in there! I'm on day 10 of a vegan & gluten-free diet (to remove allergens from diet), and while I miss a lot of my favorite food, my stomach hasn't been upset or hurting. Definitely talk to your G.I. good luck hun!

2 years ago | Likes 2 Dislikes 0