holyicon
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ʸᵃʸ --___-- ᵃ ˢᵒᵇ ˢᵗᵒʳʸ
I'm not currently injured or sick, just have Ehlers-Danlos, fibromyalgia, and a ton of neuropathy from previous injuries and illnesses. We've tried to treat it with everything from Physical Therapy to Radio Frequency Ablation to Ketamine Spinal Saturation. And it just keeps getting worse every year (for the past 30+ years). I refuse to take Opioids: fuck that.
I'm not the kind to un-alive myself: fuck that also. But I wish The Reaper would stop resetting the tutorial on me with these week-long episodes: unable to focus my vision or steady my hands.
I can't even enjoy it as "free time". What I can manage most days is telling my friends funny stories and sharing memes on Discord. At least that way I feel like I'm not a drain. And I think they keep me sane...-ish.
What I've learned:
With chronic, severe pain when you're Young, most others see you as "trying your best." It can sometimes be encouraging, but it feels pushy and for their own piece of mind. As you get older, they're more, "Well, we're waiting!" for you to either 'be an exception' or die so they don't feel obligated to feign compassion.
Death is going to have to try a lot harder to get me, but at the same time; a real life seems out of reach.
And with that, I'm out of spoons for now.
ilovebigmutts
NewtGinGrinch
Long Covid? It's reported to reactivate syndromes. I got fibromyalgia, neuropathy, and a long strange list of cycling symptoms from it.
holyicon
That's rough ><; And I'll bet people (read: insurance) will think ALL your problems go away every time one of your symptoms takes a break. -- Fortunately my lack for going places worked to my advantage during the meatier parts of the pandemic. I still get my shoots and boosters, but I really only leave my house for medical reasons (during about the pasy 10 years).
CaptKirkCameronDiaz
Sorry to hear this. I hope you get better soon.
kaeldra
Sending you so much love from another chronic pain person. I've been in chronic pain since my early 20s. In my 30s now and yeah it just feels like everyone is over it. Aren't you better yet? No my disease is incurable thanks
holyicon
tysvm <3 back at ya.
PutThePRNDLinD
I'm dealing with a wide-spread shitstorm recently, and here's six minutes I've found helpful: https://www.youtube.com/watch?v=a_JQb1F7UCk
holyicon
Indeed, music has been a great sooth. ty
DarkJaeger
That's the funny thing about pain, it will steal spoons worth a surprising amount of stealth. Wake up thinking you've got a full drawer, go to the toilet, and find they're all gone.
TotallyNotSarcastic
holyicon
ikr. Especially when you think you might get an extra spoon here n' there from a rare good sleep or a lucky joint pop: only for the pain-rebound to be like "Hey, you spent your extra spoon first, I'll take the rest!"
DarkJaeger
Often times, I'll find myself borrowing from my days off during the work week. Then wonder why I didn't get much done.....